I’ve been fully immersed back in therapy-land this month; not only with an increasing amount of clients, but also going to various workshops and events.
I may have mentioned before that I am a supporter of the group A Disorder for Everyone which is a group that challenges the culture of psychiatric diagnosis (my poem ‘Labels’ is in their book ‘We are the Changemakers’). I have no problem with diagnosis - if it helps. I like what my friend Adrianna says about a diagnosis - that it should be used like a coat hanger; something that you don’t wear, but that helps to make sense of your wardrobe, as it were! Diagnoses seem to have become increasingly like tattoos; indelible markings that become the first thing that gets noticed and talked about.
I think it is also important that people are informed about the roots of diagnosis.
The DSM that is used for psychiatric diagnosis is full of disorders that have not been categorised or classified thanks to scientific research. They are there because these conditions were voted in by psychiatrists. They were voted in based upon the decisions of a group of 9 psychiatrists who sat decided what should be in there. In his book ‘Cracked’ James Davies recalls an interview he did with one the of the psychologists who was part of the advisory committee, Renee Garfunkel. She recounts how there was a discussion about whether a particular behaviour should be classed as a symptom of a particular disorder. As Davies reports, one Taskforce member declared, ‘Oh no, no, we can’t include that behaviour as a symptom because I do that!’ (p.30)
Spitzer, the lead psychiatrist in creating this book stated, ‘There are very few disorders whose definition was a result of specific research data’. Epilepsy, Alzheimers and Huntingdon’s disease do, but things like general anxiety disorder, depression, oppositional defiance disorder don’t. Yet this is the book that is used to label people and open up the authentication of medication.
So many of our behaviours are trauma responses; are fight, flight or freeze responses in another guise. It doesn’t mean that they are any less serious or difficult or painful, it just means that they are understandable responses as a result of what has happened to us. THIS is why it is important to ask what has happened to people, to understand context.
I wrote the poem Labels after I had seen various clients come in with their labels of ‘disorders’. My ‘compulsive liar’ had been beaten by their mother and raped at school by another child. Why would they trust anyone? My ‘ADHD’ had a father who had left the family abruptly and gone on to have many girlfriends, they never knew who was going to be with him when he dropped in and out of their life. Why would they not find it difficult to focus and be hyper vigilant? My ‘oppositional disorder’ had a father who had beaten them repeatedly for mild transgressions and then left them and their mother for another woman.
There is always context.
"The relevant question in psychiatry shouldn't be what's wrong with you but what happened to you?" Dr. Vincent Fellitti
There is an alternative. The Power, Threat, Meaning Framework has been developed to provide a different narrative to the one used in traditional psychiatric medicine. I talk about it on this podcast episode with clinical psychologist Anne Darcy.
I am not pro or against labels or medication, but, like I said, I think that we have lost sight of a very important factor for both: context.
Labels work if they help you understand a cluster of behaviours in order for you to access help in appropriate places. My concern is that a diagnosis by experts can lead to a power differential in which your voice as ‘the patient’ gets drowned out by ‘the expert’. Not through intention, but through pressure of numbers and quotas.
When we seek a diagnosis
Are we hoping for prognosis
In the handing to an ‘expert’ our ‘true’ fate
I can’t help be suspicious
(Although the thought’s delicious!)
That a simple label helps improve my state.
The problem with this theory
Is it leaves me not to query
The God like status that is given by default
With their degrees and expertise
I should really feel at ease
That they’ll combat my dis-ease
And make it halt.
And yet the one that really knows me
That really seems to have the phd
In the mystery of me…
Is me.
Sophie Olson lead a workshop addressing this very issue, highlighting how it can be a problem. Sophie’s lived experience workshop detailed her painful journey from experiencing childhood sexual abuse to being caught up in a mental health system which exacerbated the harm done to her until she was told at the age of 30 by a psychiatrist that she had a mental illness that was so severe and enduring, she would never live without community support or medication.
A testament to Sophie’s spirit was that she was able to share her story in a workshop for AD4E with composure, clarity and containment. Sophie detailed the possible opportunities for intervention that were missed throughout her childhood and offered participants the chance to consider what they would do as a professional in such circumstances.
You can find out more about the work she is doing through The Flying Child project.
I have just been to the yearly UKESAD conference. Two days chock full of talks on addiction, but I was especially interested to hear about how hormone changes in a woman’s cycle can affect her vulnerability to relapse by Dr. Judith Mohring and Lou Lebentz’s talk on addiction as a form of dissociation. I interviewed Lou a few years ago on my podcast on thriving after trauma.
Mentioning Lou is a neat segue to announcing my involvement in Mindfest this year. Mindfest is a mental and emotional wellbeing day which has been held in Dorking for the past few years. It is sponsored by Joe’s Buddy Line which is championed by Roman Kemp and it is our mission is to increase mental health literacy and empower people to look after their own mental health.
We have broken the event into two streams: prevention of ‘mental’ illness and addressing ‘mental’ illness.
Some of the highlights of the speakers include:
Lou Lebentz, talking about trauma. Lou is a TedX speaker and is speaking at the largest trauma and mental health conference in Europe in September.
Jonny Benjamin MBE - award winning mental health campaigner.
Harriet Beveridge - keynote speaker (TedX, BBC and WOMAD) and comedian on what it takes to thrive in life.
Visible Recovery - a charity educating people on addiction recovery.
Michelle Catterson - chair of the British Dyslexia Association on thriving with neurodiversity.
Aga Kehinde on taking care of your mental health with long term physical illness.
Atifa Balding on thriving through the menopause and how to do self care.
We are very conscious about making it financially accessible to all, so there will be a tiered ticket pricing.
Katherine Bruce and I have been working hard on it for the last 6 months and would be DELIGHTED to see as many of you there as possible. We also have some guest talks we are recording to show in the cinema room on the day. You can register your interest now so we contact you when tickets go on sale in July. Also, we are looking for further sponsors so if you can think of anyone who would be good for us to contact let us know!
Alcohol awareness week is 3-9th July and I have just written and recorded a poem for NACOA. The theme is alcohol and cost, so I wanted to write a poem that detailed the hidden costs of alcoholism within the family. Let me know what you think! Here is a sneaky peak of it.
Alcohol robs, such a cunning thief!
As it steals, it plants distorted beliefs.
“Just having a good time doesn’t cost a thing”.
But lets look closer at what it can bring…
Sleepless nights as parents fight;
Reassuring young siblings it’ll be alright;
Family events with the threat of conflict;
No one ever mentioning the word ‘addict’.
Confusion.
Collusion.
Delusion.
All there.
But don’t say a word, no don’t you dare!
Lips tight shut, sealed by a glare.
Listening out for the key in the door
To figure out how many drinks did they pour?
Treading on eggshells to avoid attack.
Always one step forward and three steps back.
Explaining the broken plates as ‘just clumsy’.
Don’t let anyone outside the family see.
‘Don’t disturb them, they’re sleeping’, is the weekend mantra,
As they're asleep again on the sofa.
Hide and seek replaced with finding their stash.
No weekend sweets ‘cos there’s no spare cash.
Moods, tempers, all hard to predict.
No one ever mentioning the word ‘addict’.
Guilt runs through like electricity.
‘Maybe their drinking’s because of me
I need to be quieter, better, mop up.
Maybe then that’ll help them stop.’
Confusion.
Collusion.
Delusion.
All there,
But don’t say a word, no don’t you dare!
Lips tight shut, sealed by a glare.
Alcohol robs, such a cunning thief!
As it steals, it plants distorted beliefs.
‘Just having a good time doesn’t cost a thing’
Until you look closer at what it can bring.
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Thanks for reading.
That’s it for now,
‘Til next time.
Jacky x